After suddenly losing vision and feeling in her body, Sumaira was diagnosed with neuromyelitis optica (NMO), a rare autoimmune disease that affects the central nervous system resulting in vision loss and paralysis. Two months after her diagnosis, she started The Sumaira Foundation (TSF), a now global nonprofit organization dedicated to raising awareness of rare neuroimmune disorders, building communities of support for patients and their caregivers, funding research and advocating on behalf of patients. TSF is proud to be patient-led, patient-powered, science-driven and therapy-agnostic. The organization is proud to call 102 patients, caregivers and clinicians TSF Ambassadors representing 35 countries. A Personal Message from Teresa Clark (TSF Ambassador): "As many of you may know, almost three years ago, in May 2022, I was diagnosed with a rare autoimmune disease called NMO - Neuromyelitis Optica. This 5k has been something I've wanted to do for years now, so I'm excited to finally be
Hotels Near This Race
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TSF 5K for Rare Neuroimmune Disorders 2026 — Weston, MA
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Race Travel Insurance
Don't forget travel insurance for September 13.
You've trained for months and booked a trip to Weston, MA.
A pre-race injury, a delayed flight, or a family emergency can derail the whole thing.
Travel insurance can help cover your race entry fee, hotel, and flights if you can't make it,
and may cover medical costs if something goes wrong on the course. Plans typically only run
5-7% of your total trip cost — and running events are covered under standard plans with no
additional coverage needed.
Trip cancellation up to 100% of prepaid costs
Running events covered under standard plans — no add-ons needed
Trip interruption up to 150% of non-refundable costs
